Claire Wineland, cystic fibrosis activist and social media star, dies at 21

Activist and social media star Claire Wineland died on Sunday just a week after receiving a double lung transplant

Claire Wineland, cystic fibrosis activist and social media star, dies at 21

The transplant surgery was a success, but soon after, on August 26, she suffered a massive stroke caused by a blood clot.

The American, who amassed more than 250,000 subscribers on her YouTube channel, died on Sunday in hospital surrounded by family.

"It hurts everything inside of me to make this video".

"Everyone is always surprised that we go to school, too, and live normal human lives. It's not like we walk around like dogs with our tails between our legs all the time". Your prayers, support and encouraging words, have been a huge source of strength for her and her family.

"We know Claire was loved all over the world", said Laura McHolm, chairman of the board for the non-profit Claire's Place Foundation, in a statement.

She was one red hot spark of inspiration and joy, wasn't she?

At age 13, after coming out of a 16-day medically-induced coma, Wineland founded the Claire's Place Foundation to financially support others affected by her lifelong disease.

The California native was diagnosed at birth with cystic fibrosis, a genetic condition that overloads the organs with an excess of mucus.

"The quality of our life is not determined by whether we are healthy or sick but by what we have to offer to the world around us", her bio on the Claire's Place Foundation website read.

Through her videos and social media posts, Wineland tried to break down stereotypes about sick or disabled people, telling her followers in March that she'd "struggled more with guys, depression drugs, family and career than I ever have with my illness", adding, "I'm not an innocent and I'm not a child".

Wineland gained popularity for her videos, where she candidly discussed the hardest parts of CF, often with humor and a smile. Due to this in the 14 years she became famous. It's about what you do in your life, and at the same time about whether you feel a lot of pride for who you are and what you gave " she said.

"Claire's corneas and tissue was recovered and she will be able to enhance the life of up to 50 people", a family services specialist wrote in the email.

"Over the past six months or so, my health has declined dramatically - just took a friggin plummet", she said. "I didn't realize how much I didn't expect to live this long", she said. Really. I mean that seriously.

Following the transplant, she suffered a stroke.

Claire is an organ donor and her mother has confirmed that she has already saved the lives of two people.

The bodies of Claire was given for transplantation to those in need. They had been on the receiving end of that call just one short week ago,"McHolm continued".

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